Free Bleeders

About Us

Background

Free Bleeders is a non-profit organization based in Atlanta, GA, founded by Tracye Hamler in 2019. We serve as a resource for advocacy, education, and networking for women diagnosed with bleeding disorders or those caring for someone with such conditions. Our mission is to raise awareness, educate, advocate, and support this special community, while empowering women to advocate for themselves.

Tracye Free Bleeders

Disclaimer: “Free Bleeders,” a non-profit organization for women living with bleeding disorders, should not be confused with the “Free Bleeding” movement, which began in the 1970s as a reaction to toxic shock syndrome and other social motivations.

Why Focus on Women?

History

Historically, Hemophilia was considered a “male disease,” leading to misdiagnosis and inadequate care for women. Women often faced hormonal treatments instead of proper screenings for inherited bleeding disorders. Alarmingly, the average time from symptom onset to diagnosis for women is 16 years. Our focus on women addresses the urgent need for early diagnosis, comprehensive testing, and appropriate care.

Understanding Bleeding Disorders in Women

Bleeding disorders are conditions that disrupt the body's ability to clot blood properly, leading to symptoms like heavy menstrual bleeding, nosebleeds, and postpartum hemorrhage. These disorders can profoundly affect a woman's reproductive health and overall quality of life, making awareness and understanding crucial.
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Common Bleeding Disorders in Women

Von Willebrand Disease (VWD): As the most prevalent bleeding disorder among women, VWD results from a deficiency or defect in a clotting protein. Women often notice symptoms such as heavy menstrual bleeding, nosebleeds, and easy bruising, especially during menstruation and childbirth.

Hemophilia: Although primarily affecting men, hemophilia can cause mild bleeding symptoms in women due to genetic mutations. Women may experience prolonged bleeding from cuts, heavy bleeding after dental procedures, and recurrent miscarriages.

Other Causes and Symptoms of Bleeding Disorders

Women with bleeding disorders might face additional challenges, including heavy bleeding during or after surgery, frequent nosebleeds, and excessive bleeding during dental procedures. These symptoms can lead to anemia, menstrual pain, and a diminished quality of life. Other contributing factors include liver and kidney diseases, medication side effects, and thyroid imbalances.

Treatment and Management

While bleeding disorders have no cure, effective treatments are available to manage symptoms and prevent complications. Hematologists, specialists in blood diseases, can diagnose these conditions through blood tests and recommend tailored treatment plans.

Impact on Women's Lives

It's estimated that up to 1% of women in the United States may have a bleeding disorder, with many unaware of their condition. Women with heavy menstrual bleeding or VWD face increased risks of anemia, hospitalizations, and blood transfusions, which can limit daily activities and impact their quality of life. Raising awareness and providing support are essential to improving outcomes for these women.

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Make a Gift

Your support makes a difference. By making a gift to Free Bleeders, you help us continue our vital work and expand our reach to more women and girls affected by bleeding disorders. Together, we can create a brighter future for all.

Empower a Woman

Inclusive Events for Women & Girls

We organize inclusive events designed to empower women and girls, providing opportunities for education, networking, and personal growth. These events foster a sense of community and support, helping participants connect with others who share similar experiences.